One Week In

I feel its safe to say the ground has been hit running. People said the first few weeks would be quiet and you would be wondering what to do. I can say conclusively that I have not had a shortage to do. So lets run through the week.

Thursday- we started by sharing where we are and where we wanted to be with the staff team. Each of us was to bring in a small object to represent this. After racking my brain I decided on my headphones. The reason being is that I like to learn but I am a distractable human and my headphones allow me to shut out world and distractions so I can focus. I’m ready to learn but I’m also acutely aware that this isn’t the time to shut out the world. The rest of the day was admin things like our schedules and keys. The day was far longer than anticipated. I was grateful for the words of wisdom passed on to me, particularly from Jess who told me the things she wish she knew, the things she learnt for herself.

Friday- What’s a day off for one job is a day in for another. I wasn’t working on the box office until the evening so I took the day for myself to do housework, to introvert and to try to slowdown a little. It was busy at the box office as Charlotte church was performing and so lots of tickets to print in not so much time. I sat with a woman who had puked everywhere and I also got a lift home which was much appreciated as I had zero desire to walk the streets of Leith alone and it meant I didn’t have to pay for a taxi.

Saturday was a full day at church- prayer ministry training in the morning and a welcome back event for the primary age groups in the afternoon. Prayer ministry was exciting. Emmy from HTB in London told us incredible stories of healing, releasing people from demonic manifestations and of revelationary gifts. It was incredible to here of her experience of prayer and the lives transformed by it. The wave of fear that had rippled through my body when it was time to practice our revelationary gifts dissipated. It became less daunting and more focused on how I wanted to hear God speak. Listening is hard, discerning is hard but I knew the people I was in a group with were wise and forgiving. I was in a supportive environment and words were spoken over my life too. We had a nice wee picnic lunch then it was all go with games galore, awesome crafts including we getting to use spray paint and feeling pretty edgy then we had food and a treasure hunt everyone had a blast and kids who were hesitant at first were having a blast by the end of the afternoon. I saw my final fringe show of the season. BlackCatfishMusketeer by Malaprop Theatre. Excellent show, humorous and poignant. I then just chilled in the staff room sharing stories which was my kind of socialising.

Sunday felt a little more normal. I ran a kids group in the morning, wasn’t my regular group but it was kids who had been in my group last year so nothing felt out of place. Turns out tidying up takes ages. I had a wonderful afternoon at my friends house. We went to the park and I had to so down the slide sideways as my I didn’t fit if I went down on my bum. We had cheese and oatcakes for snack and  a proper catch up having not seen them properly for a few months. What was a little less normal was in the evening service I was working. It was now my job to keep and eye out and welcome new people, to fill any gaps that I saw, be it in serving tea and coffee or in prayer ministry. Having that state of alertness was strange.

Monday- I was in the office and it was me just chipping away a work and poorly prioritising tasks, then I had 3 hours of respite carer training and in a shocking turn of events it only lasted 50 minutes which was a small victory. In the evening there was the End of the Fringe staff party. I don’t think I have ever been so sleepy at a party before so ducked out early.

Tuesday was meetings galore. We had staff prayers then there was children’s ministry meetings, then a staff meeting and when my supervisor returns to to work there will be even more meetings on tuesdays. I also made the final move to my home for the year. I have barely unpacked but its nice to in one place where I can unpack my closes and unwind a little, watch bake off curled up with a cat. It’s chill and I like it.

Wednesday was the day i realised that I had a lot work to do and not a lot done. So I kept my head down and finished my presentation probably. It’s also probably terrible and I have yet to rehearse it in any shape or form. We also had our first Intern time were we learnt the history of the Scottish Episcopal church  which is more interesting that it sounds and provides excellent context for the church I’m working for. I then caught up with a good friend as she ate at spoons and I stole chips off her plate. I still had dinner plans and went to the Children’s Ministry Assistant’s house for dinner and a meeting about one of out Saturday clubs which was great fun.

Now we are on a prayer and study which is harder than I thought. I don’t seem to have any capacity for focus. I have done my extended bible reading. And have now nearly finished a blog post. I might do a spot of watercolour or calligraphy, I shall reflect on my life and my commitments. I also have to go get stuff for my friends birthday. Essentially I’m just making stuff up as I go along.

 

Start of Something New

On Thursday I have my induction to intern life, I will stop being “just graduated” but will be an intern at my church. But what does an intern do? Excellent question, that is is a question I will be asking on Thursday but I will let you know what I do know. First I will be specialising in working with children. My church has a thriving children’s ministry with over 500 families on the books from the community attending our Babies and Toddlers group aka B’s & T’s, we have over 150 primary aged children on Sundays. When kids are too old for B’s & T’s we have Bounce 5 times a year with face painting, bouncy castles, soft play and lots of fun and games. For older kids we have Jump and Energise with all sorts of activities and adventures. Also pizza.

When I’m not playing with children or chatting with parents, what will I be doing with the other two thirds of my time? One third of my time will go into general ministry. There is no shortage of stuff to get up to from youth and students, refugees and the homeless, evangelical ministries like the alpha course, worship whether that’s on stage with the band or on the tech desk, prayer ministry and welcome team; the list could go on. I suspect I won’t be involved in all of the above and hopefully I will receive an element of choice. It will be cool to try out some new things, I have never done prayer ministry in a church setting or been involved in leading an alpha group so there will be no shortage of new things. I suspect that’s the point.

That final third of my time is the one that is shrouded in the most mystery. Personal Growth time. I have heard mention of mentoring and leadership training, weekly meetings and prayer and study away days. But I don’t really know what any of that looks like but I understand I will be invested in which will hopefully reflect in my relationship with God. Must say I have just gone back and read the job description to see if I can get any more clues as to what on earth will be going on. Lots of buzz words.

How am I feeling about the internship?

Well it’s a bit scary as people have big expectations of me and as do I. Interns are intrinsically cool and popular, they are sociable and everyone wants to talk to them. I on the other hand am deeply introverted, I’m not the life and soul of the party. But when its my job I have found I can be sociable and extroverted, I just crash majorly afterwards. That is going to be a big challenge for me.

It’s exciting too, there are so many opportunities and so much to learn and I love learning. There will be plenty of new information and experiences,  I get to go on all sorts of different courses and conferences which I’m really exciting about. I will get a little more access and responsibility in the behind the scenes running of children’s ministry, my voice will carry more weight which is fantastic. My dream is to make children’s ministry more accessible for children with additional needs. I hate to see families who feel they are unable to come to church or church events as their child is too difficult or disruptive and so everyone misses out.

So what to I want to get out of this year

I want to grow in my faith and more importantly I want to grow in a way that is independent of being employed by the church. I want to walk in a way that is sustainable rather than purely situational. I want to go deeper, I want to develop my prayer life, I want God to be the centre, not  just a bit on the side. I want to know the scriptures better and to sense how alive and relevant they are in my life. I want to be bursting with passion for the Lord although that would be somewhat uncharacteristic for me as I’m not much of a feelings person.

I want to help children grow in their faith. Seeing children captivated by God’s word or sharing their stories of faith and telling their friends brings much me so much joy and I want to see more. I tend to work with the same kids through out the year as I’m only a leader in one group on Sundays but as part of the internship I will get to tour lots of groups but it also means I won’t have one core group of children although my group is one of the ones that is struggling for leaders so I’m sure I will be in frequently.

I want to step out of my comfort zone. Or do I. I think it will be inevitable if I want to do a good job. Giving a sermon sounds terrifying, it’s optional but it sounds like a great oppourtunity. But while its the smallest service, it’s also to probably the most discerning congregation as they tend to be old folk, high church folk or theology students; so while they are a nice crowd they will know if I slip up. Prayer ministry sounds scary as does staff meetings to be fair.

I want to serve the Lord with all that I have rather than just what I have to spare. This will involve sacrifice and investment none of which will be easy but I didn’t sign up to this because it was going to be easy. So I will have to put my laziness behind me and suit up in the amour with God. After all it does say that I can do all things through Christ who gives me strength.

Bring It On

 

 

 

Hello…Flat Mates

One week on and I’m back in the box office typing away, every so often I sell some tickets. It’s really strenuous labour this box office job.

Friday was a standard day on the box office selling tickets and being bored but I did have something to look forward to. When worked finished I headed up to St Andrew’s Square to meet my sister who i hadn’t seen since the beginning of July really, with the exception of a flying visit. We sat in the gin garden and she drank gin and I drank lemonade, classic us. She had started her new job that day and so she filled me in on what her job would entail and also that she had been carrying a jam jar of gin around in her handbag all day. So advice from my sister, you can’t start a new job without your favourite drink. A band was playing but so while conversation had to be shouted it was still nice to chat and the band was pretty good too. I then slinked home and curled up in front of the laptop and the rest of the evening was a non event.

Saturday was a different day for front of house. 2 weeks later and I was finally getting to do the remaining shows, that would be 2 children’s exploring the tales of R. Kipling and then the story of the little prince. I was so excited for interacting with the children, there wasn’t exactly a crowd for either show and the second one was all adults so there was less high fives and pulling silly faces than I would have liked but the shows were good.I then had a considerable break so I decided to go for a big walk so I went for a picnic in Princes Street Gardens, then scaled the giant rock on which the castle sits. I dodged flyerers and tourists as I hunted for a good street act, I left some what disappointed by the performers that day but I continued walking, followed by a spot of retail therapy. I wanted to get back in time to catch the get out of my favourite show just so i could hang out with my favourite company, Proteus Theatre. Turned out one of the main lights had started doing some major flickering so what once looked like a cell now looked like a rave. I was heart broken to have A) missed the rave and B)seen Mary (the actress) die at a rave, she is a powerful actor so I was curious to see what she would have done with it. I also got to see Edith in the Dark inspired the the Tales of Terror written by E. Nesbit. It was spooky, funny and a great show, but the set is a hoot and a half to put up and take down.

I got home to a treat, my flat mate had returned and we had been terrible at staying in contact with each other for the 3 months she had been gone so we chatted for hours about the highs and the lows of our summers and it was really special to be back in her company again. I had missed her more than I realised.

Sunday morning broke and with it came the arrival of children’s church and with a new school year means new children which was fun and yet challenging. I love children’s ministry and I think I have an entertaining batch for the year to come. It was so nice to be reunited with one of my favourite people in Edinburgh. She is my mentor and dear friend. It was a flying hello and how are you but seeing her again brought a smile to my face as I hadn’t seen her in 2 months. I then took home a second temporary flatmate who is just staying for a few days.  We tried to display some photos on my wall before I headed out to work for another day on the box office. I did enjoy a lovely stroll along a short stretch of the Water of Leith on my break  which was a lovely way to clear the head. At the end of my shift I stepped out of myself and went out for drinks with my work friends. It is not that I don’t go out for drink with my friends, it’s more I don’t tend to start the night at 11:30 and I had heard stories of big nights out so I was a little hesitant.  I stayed until 1am which is a big deal for me as more of a ‘get the last day bus’ kind of girl. I had a blast though and people were ‘fun drunk’ as opposed to ‘annoying drunk’ and they found out that church skill exists as they had no idea that people still did that kind of thing. I am now a party animal with my lemonade and my late nights.

Monday was a day of 2 halves. The morning was horrible. I had an appointment with my university mentor who just also happened to be the Special Educational needs officer for the school and so he was going to help me get the help I needed. He spend the time dismissing any problems I had as if they didn’t exist and like I was no different to any other student, he then criticized every step I had taken to get help. I have never been made to feel so awful by a lecturer, I have never been told I was wrong to seek help. I don’t know how I got so upset but I excused myself and burst into to tears the moment I shut the door behind me. I wiped the mascara from my face, put on my sunglasses and headed home, sitting at the front of the bus so no one could see me cry.

I went back to my flat mate and sat on her bed and cried, it was really good to have someone there at the time, some one to listen and some one to understand. I had a breather and then much to my excitement went round to my American friend/mentor’s flat and there we sat for 2 hours chatting and laughing, sharing both the good and the bad. She also showed me what new born cloth nappies looked like and they are adorable. I suspect I will be less enthused by the nappies when the baby comes but they are just so soft. She is a really special person in my life and so I consider it a treat spending time with her. After I left hers I then ran to the Festival Venue round the corner for I was taking my flat mate to see the wonderful Jon Cozart as a birthday treat. While it isn’t her birthday until the end of next week this was the only time I could see the show so I just decided it was her birthday present. We had a blast, it was funny and he is a very talented man. It is some what strange to see the person you know from the internet perform in front of your very eyes. There is a bit remarkable about internet celebrity as you do feel like you know them much better. We got a photo and an autograph. It was all very exciting and there is a wonderful warm fuzzy feeling you get when you see your friend with a smile plastered across her face as she descends into hysterics because of a gift you gave her.

We ventured out into festival old town, which is a daunting place for the inexperienced, on the hunt for tea and after some persuasion we wound up at the Aroma Cafe, a lovely wee restaurant, which is one of my favourites in Edinburgh because its were Roots is held on Tuesday nights, so there are lots of happy memories there. The restaurant owner was there and he recognised me, he gave me an extra pakora which very exciting as I do love pakoras. We finished the evening nearly making ourselves sick at the play park and a leisurely stroll home. It was a wonderful afternoon and evening, spent with some very special people.

Tuesday meant I was working the evening shift so I am fairly sure I did nothing in the morning just chilled which was glorious. Hung out with my flat mates and just had a bit of a breather, no rushing about. The afternoon brought another trip to university in order to meet with disability services. I was nervous, in theory it couldn’t have gone any worse than the day before. I had nothing to loose was the theory but I knew that hope wasn’t hard to loose. I was somewhat nervous and there had been little success in the past but the meeting was really positive, we came out with Plan A’s and Plan B’s which was wonderful. My faith in disability services has been restored significantly. We will just have to see if these plans come into action. It was off to work then for some of the dullest hours of my life. It was the 18th which is rest day for the fringe and so I turned up at 6 the next show was not until 9:30pm. There was little to do and so the internet was trolled, doodles drawn and much regret for the book I left at home.

Wednesday brought my favourite shift which starts at 10, prepping for the 11am show, The Biggest Marionette Circus in the World! which is always fun, lots of children. Then there was a quick get in for The Wind and the Willows. Its then straight downstairs for 12.10.15, my favourite. We had the stage set before the cast even arrived because we are that on it and also really wanted something productive to do. The show upstairs produced some interesting complications, we tried to pass off what sounded like a heard of angry elephants as an IS training camp, I don’t know what could have been done about the accordion solo. We were a little bit angry at the other company for not helping the tone of the play. It is a very serious play but the show must go on and it did. Then many rants were had by the theatre company, myself and customers. It was tense. The afternoon continued and finished the get in for Shout! The Mod Musical. I had an acoustic night to get to once I traipsed my way home. As knackered as I was it was a wonderful night. The music was exquisite and his story always touches a nerve. The church it was at was VERY welcoming many people came us and took the time to find out more than just our names and where we were from. We bought the CDs and all. We are big fans of Steph MacLeod.

Thursday was the same shift, you know the drill, differences included an entire primary school for the Marionette Circus which was fun, they really enhanced the atmosphere, lots of cheering and enthusiasm. Shortly after the circus we started having power cuts and so that put me on edge even though I had no power to do anything but well done to the actresses who powered through and well done to the technicians who sorted it. The noise was less bad in 12.10.15 but I did notice the actress’ clever ‘look up’s to see what was going on. When I got home my friend was waiting so that she could cook me burritos, we had a lot to put in the wraps but not so many wraps so my seconds was a burrito sandwich of sorts. We then just chilled. It was really nice to see my friend and my flat mate get on so well. They didn’t no each other a few days prior.

Today is Friday and I’m sitting in the box once more. There have been some sales but not much to report other than buying Fruit Pastillies was wonderful yet terrible idea.

Hello… Seven Year Mark: Life With Epilepsy

So bit of a different post today, It’s time to venture a bit deeper into what my life looks like and it all changed 7 years ago.

I was 13 and it was the morning after a sleepover, I was sitting on the bed at 9am stuffing my face with chocolate as you do and then there was darkness, I could hear my friends Dad telling me, “Open your eyes if you can hear me”. I could hear him but I couldn’t open my eyes, they just weren’t doing as I wished. I was terrified, why couldn’t I open my eyes? I had just had my first seizure. For the past few months, we had been going to endless doctor’s appointments, I was getting “dizzy spells” as I would call them, everything would be out of focus and moving and my head felt like it was about to roll off my neck. Before them were “black outs”, darkness encroached on my eyes from the outside in and for a moment my vision and my mind would go blank. When my sight returned I wouldn’t know where I was or what I was doing but on I would go pretending nothing had happened. The seizure answered my question of what was going on but brought with it a multitude of questions.

Epilepsy meant drugs and consultants and hospital clinics, that I could handle. My independence vanished in the blink of an eye that on the other hand was much harder to handle. The only time I was allowed to be in a room by myself was when I was asleep, I couldn’t lock the bathroom door anymore and if I did there were still keys to access the bathroom from the outside. I felt like a toddler who can’t be trusted alone. I am an introvert, I like alone. I couldn’t go anywhere alone; if I wanted to walk the 100m to my friend’s house I had to text my mum if I made it safely. I felt trapped but I knew it was for my own safety and I reassured myself that the medicine was going to make it better.

25mg, 50mg, 75mg… 300mg… 600mg and 2 years in and 800mg a day of Lamotrigine and the seizures would still arrive every 3 weeks like clockwork. If they didn’t have any side effects that would just be disappointing. I was no longer my normal self, school became much harder, I struggled to learn or recall information, the cogs in my head slowed right down. My personality flattened out for a while. You start to forget what life was like before medication, what was it like to be free?

Well lamotrigine wasn’t working so it was time for more medicine. This time it was levetiracetum and we weren’t starting with a measly 25mg, nope straight in with 250mg. The doses piled up, the cogs turned even slower, balance was suddenly an issue, though I hadn’t had excellent balance before, standing on a flat stationary surface on a still day was a lot more challenging. But as the doses increased, so did the spaces between the seizures until at over 2000mg of Levetiracetum a day I had my last tonic clonic seizure in January 2011, during my geography exam which I got a half decent mark in to. We could now take out the lamotrigine and I thought get back to a normal life. What I had forgotten was there was more than one kind of seizure.

Absence seizures are sometimes easy to spot, when I drop to the floor in a loud thud and I don’t know what my name is. Other times I just stare into space and to the untrained eye looks like some pretty intense day dreaming. My personal favourite description of an absence seizure came from a guy at youth group kindly informed me that I looked like I was possessed by the devil. Charming. Eventually these appeared to stop but I didn’t know how to trust myself. In November 2011 I was allowed to drive, the notion terrified me so I came up with excuse after excuse as to why I couldn’t learn. I couldn’t bear the thought of hurting someone else because I had no control over the car.

Summer 2012 provided me with an ideal excuse. I was at a summer camp and it had been over a year since my last seizure I was on rough 2500mg of medication a day and all seemed fine. That was until I fell out a boat, a stationary boat at that. I sailed as I grew up I was used to boats and knew what to do if I fell in. The only problem was I didn’t know what was going on. Was I coasteering? That must be why I’m under water. But wait I’m wearing my water proofs and as I resurfaced I saw the boat sitting waiting for me and my heart sank in my chest. This wasn’t a good sign. People thought it was funny, I told them I was really worried about what happened but they blew it off like it was no big deal. Sadly it was a big deal; the medication that was holding me stable was no longer enough and so up it went. I didn’t have to make excuses as driving wasn’t an option

Every so often a rough spell would come along but I sucked it up because you become a very strong person I found. New and exciting opportunities lay ahead as in 2013 I went to university. There was no one to check if I had taken my tablets but also no one to enforce lights out. I could live as I wished within reason; the doctor was clear lots of sleep and no alcohol. I accepted that and seized my independence with two hands. I no longer did I feel bound by my illness as I was more free than ever as I now had a swanky travel card because I couldn’t get a driver’s licence. The best part was no longer was I the girl with epilepsy. This was a fresh start and I only told the people I chose. There were of course limitations I still had to get enough sleep but I decided to move to an average based system of making up for lost sleep and I had my night dose of medication in a pill caddy on my keys so I that could enjoy student life with minimal interruption.

Out of the blue in November 2014 things got harder. I was flooded with dizzy spells and excuse my simile but my attention span was like that of a 3 year old with Attention Deficit Disorder. My memory was failing me as was my articulation. I couldn’t forget I had epilepsy anymore. While since diagnosis I had been given the label of special educational needs, this was a whole new ball game. By the grace of God, continuous assessment and Hank Green on crash course I sat and passed those exams. The dizziness continued and so up went the medication we were now at the glorious 3gram mark. You know it’s bad when your medication is in grams.

The attention got worse but most of the dizziness went away so I approached the next semester with fear and trepidation. What was I going to do? How could I study? I successfully listened to one whole lecture the entire semester when beforehand I would have left with pages of lecture notes. It would get better, my body would adjust to the new dosage and things would return to normal, right? The university can offer me help in the meantime, right? Wrong 2 months past and the attention remained unchanged and the university treated me like a dyslexic offering me spell checking programs on the school computers and study skills such as have you tried cue cards and highlighters. I rang the epilepsy nurse in March 2015 and we chatted. The Epilepsy Nurse has been a star throughout offering support above and beyond the call of duty. We chatted and so we dropped the medication. I will deal with the dizziness and the attention will go back to normal this time, right?

That brings us to today, awaiting exam results after studying like a maniac. A maniac with no attention span. For eight weeks I studied seven hours a day in 20 minute blocks, wanting to pull my hair out, wanting to cry because I realised that a day of studying had gone by and I didn’t know any more material than when I first sat down. I had a lot of encouragement from the staff at the student group Roots where I studied every afternoon but it felt like torture. By the grace of God and continuous assessment I may pass. Sadly Hank Green couldn’t help quite as much.

It hurts to think that 7 years ago I thought give it a year and it will be fine, that 4 years ago I thought, that’s it, I’m stable. It hurts that every time we changed the medication I thought, that’s it, life will go back to “normal”. I say that because what is a normal life when you live with a long term illness. For a while I thought it was when you didn’t notice the condition but I feel now that is too much to hope for.

Tomorrow marks the next step. New year, new medication. Tomorrow I visit the GP and he will write a prescription for my next medication. I can’t handle the current side effects as they are and so for the next 8 or more we weeks we will introduce a new medication. It might floor me, leaving me groggy, confused and off balance along with a whole list of other side effects to choose from. It might solve everything and my fears for my degree can ease because right now that 2:1 that I need to be a chartered member of the British Psychological Society is looking near impossible.

As a believer in an Almighty and powerful God who walks alongside me, who is wise beyond understanding and yet knows the pain of unbearable suffering, I know where to place my trust. It is the same God who kept me safe when I fitted in a swimming pool, under an archery target that landed on me and in the middle of the road. The same God who works through miracles and medicine. The same God who was there when I cried and there when I celebrated. This same God will walk with me into what is unknown to me but all part of his glorious plan. And so I leave you with a song by Hillsong called Glorious ruins. As I walk through the fire, I know that I am being refined in the person God created me to be, the best and most Christ like version of myself.

Hillsong Live- Glorious Ruins